Hope!!

Another undesirable blood test report
Another round of reactive tweaks to the medicine dose
Another test next week...
This cycle never seems to stop.

In India - the tweaks were too often
In Germany the tweaks are too few (despite increase in values)

This process to say the least is extremely frustrating for the patient and for their care givers. The doctors are too busy to explain things. This whole trial and error approach is just crazy.

Amidst all this, I came across this article and I am so glad there is some research on going in this direction: Stanford study in transplant patients could lead to better treatment.

Considering how long things take to become mainstream in the healthcare industry, I don't know when this will...but I'm glad there is hope.

Friends with kids

One of the 'new normal' seems to be our restriction to meet friends who have kids. Reason being, kids going to kindergarden seem to almost always carry some infection.

This one is a real bummer cos we'd really like to play around with the kids and we always now have to check when the kids are away with grandparents/ baby sitter etc so we can meet our friends.

Hopefully we get over this phase before these kids forget who we are, before the parents give up on us and my restrictions.

*Sigh!*

Another milestone: 6 months with Nuo

Today Nuo and I finished 6 months together.
The important thing is, my mom, Nuo and me are doing good so far. Here's hoping things stay this way and the three of us can lead our lives with minimal disruptions ahead.

Thanks Mom :)  

An inch forward

So we finally have a decision on the medications for me and it looks like I'm back to square one. Only this time, it is all based on the series of tests and biopsy I went through since we returned to Germany.
So Everolimus is off - am on the Tacrolimus, Myfortic, Prednisolone regime. Higher dose of Tac and Myfortic and lower dose of Prednisolone.

It's wait and watch time (again). Lets see if Nuo likes this new/old regime this time around....