Thursday, October 24, 2013

Status Quo - But for how long?

Haven't you heard these before -

  • No news is good news
  • Don't change a good thing working
  • Patience is a virtue
However, when one is waiting for the decision on how to proceed with the treatment going forward the above do not come across as practical and feasible point of views. Its been over a month since we have come back to Germany and still there is no answer to the basic following questions which needs to be answered for Sats -

  • Which 3 medicines need to comprise the 3 drug protocol which she needs to get onto going forward
  • What is the individual dosage of the 3 medicines
Both the doctors here and Dr. Vishwanath agree that she needs to get off the 4 drug regiment as quickly as possible. This is critical as she is more heavily immuno suppressed than a "normal" transplant patient but disagree on the combination of the 3 drug protocol.

In order to have a better understanding of the approach to be taken a battery of tests have been performed on Sats - some reports have come e.g. BK- virus is negative and some are awaited e.g. Donor related antibodies. In the meantime we are all sitting and twiddling our thumbs while the creatinine is stable at a higher range than normal of 1.6-1.7. The normal as defined consistently for Satya is a range of 1.3-1.5.

Sats, doesn't want to push the Doctors here too much but I am exasperated with this wait.

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