Its been a week since we got back to Germany. This whole week we have been visiting Nephrologists almost every day - giving blood samples almost every day.
We used to get frustrated with the hospital in Bangalore for doing tests too frequently...and here we are.
Apart from meeting the original (pre-transplant) Nephrologist, we also decided to meet and explore the option to go to a new Nephrologist - walking distance to our home. The primary reason was the convenience of being able to walk over given the frequency of tests I am needing.
Interestingly, the doctor close to our house came across as a more open minded, very well versed in English and more specialized in transplant patient care.
As we have just gotten back and are yet to start any post transplant treatment with either, we decided to make a switch to the Nephrologist close by - communicated this to his clinic too.
Lo-and behold, we have another decision to make:
We used to get frustrated with the hospital in Bangalore for doing tests too frequently...and here we are.
Apart from meeting the original (pre-transplant) Nephrologist, we also decided to meet and explore the option to go to a new Nephrologist - walking distance to our home. The primary reason was the convenience of being able to walk over given the frequency of tests I am needing.
Interestingly, the doctor close to our house came across as a more open minded, very well versed in English and more specialized in transplant patient care.
As we have just gotten back and are yet to start any post transplant treatment with either, we decided to make a switch to the Nephrologist close by - communicated this to his clinic too.
Lo-and behold, we have another decision to make:
- Get off a nephro toxic immunosuppressant - Prograf OR
- Get off Everolimus (something introduced on me to stabilize my Creatinine as I was supposedly sensitive to Prograf. This is the protocol I was on before the Creatinine started creeping up and I had a biopsy done)
Since I've had a rejection case in the last 4 months, getting off Prograf completely sounds risky. Hence the Nephrologists in India proposed keeping it but in low dosage. Together with Everolimus. But get me off Myfortic - a combination none of the Nephrologists here want to follow.
What does a patient do?
Regardless of what which doctor in whichever country says/does, my body has turned into one experiment to push in some combination of chemicals, do a test every other day, tweak the combinations...keep waiting and watching...ultimately if the results are not as the doctor desires, do some invasive thing like a biopsy or a surgery or whatever else there is to do...
So why do doctors try to give this false impression that they care to give me an option to choose?
So as the spiritual leaders say, "just surrender" - except they preach, surrender to the divine.
I need to just surrender to these doctors who are incapable of empathizing with their patients. I might as well sign up to become a research subject to a hospital around here...at least someone will benefit some what they learn out of the experiments on my body.
ANNOYED at the attitude of doctors and a sense of helplessness I feel! Whoever said, life after a transplant is 'near normal.' The "NEAR" is not to be under estimated.
No comments:
Post a Comment